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[edit] References

[edit] The Role Of On-Line Cancer Support Groups In Enhancing Healthcare In Developing Countries- Case Study Of A Chronic Myelogenous Leukemia Discussion List

Abstract: We report here, the history and development of the first on-line chronic myelogenous leukemia (CML) discussion list in Asia. This support group comprises of international participants and provides a unique conduit by which CML treatment information is transmitted from patients in developed countries to patients in semi-developed and developing countries. As a result, patient individual healthcare is enhanced in poorer nations. The discussion themes are described and through an on-line patient survey, the needs of patients in developing countries are compared to the needs of patients in developed countries. The role of the Internet in networking health information is highlighted and at the same time, some drawbacks of e-health are mentioned which make patient health information inaccessible in many parts of Asia.

Rai-Chaudhuri, A, Hugh H R (2004). "The Role Of On-Line Cancer Support Groups In Enhancing Healthcare In Developing Countries- Case Study Of A Chronic Myelogenous Leukemia Discussion List. Internet Health 3 (1): e2. Retrieved on 2006-06-29.

[edit] Online Communities Become Collaborators in Research

Abstract: Much illness has substantial impact on society and the individual, but is nevertheless relatively rare. This scarcity of affected people hampers clinical research into the causes and treatment of the disease, leads to difficulty understanding the natural history and masks the impact on the individual and society. These problems can be solved though close collaboration between large numbers of motivated people who care for or suffer the illness in question and finding these people, giving them the tools and organizing them to collaborate can be facilitated by the Internet.

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