From LO-Wiki
The heart of ACOR is a large collection of cancer-related Internet mailing lists , which delivered 1,847,431 e-mail messages last week to subscribers.
In addition to supporting the mailing lists, ACOR develops and hosts state-of-the-art Internet-based knowledge systems that allow the public to find and use credible information relevant to their illness.
ACOR aims to:
- Provide information and support to cancer patients and those who care for them through the creation and maintenance of cancer-related [[eCommunities|Internet mailing lists] and Web-based resources
- Provide our subscribers with access to varied and credible information sources through Internet resource development and partnership with trusted content providers
- Improve communication between patients and health care professionals through advocacy in a variety of public forums, including the media and professional journals
- Improve understanding of the effect of Health eCommunities on patients, caregivers and health professionals through in-depth research, via web-based surveys and dissemination of collected information vio online resources such as this wiki.
- Respect its subscribers by
- working to protect their privacy through the implementation of secure systems
- providing full explanations of the limitations of ACOR's ability to prevent unathorized access to the ACOR database
- promising not to sell or transfer personally-identifiable information to a third party without the informed consent of each subscriber BEFORE the data is collected
- educating users concerning relevant existing and emerging privacy concerns in Internet health care
- participating actively in the creation of ethical guidelines for eHealth.
